Gilbert teen with rare blood disorder raises awareness for other - Tucson News Now

Gilbert teen with rare blood disorder raises awareness for others

A Gilbert teenager suffering from a rare blood disease is trying to make a difference by getting others to donate blood and bone marrow.

Kinny Patton, 15, is also trying to raise money for others in her situation by putting on a charity golf event in Gilbert Friday.

Every month, Kinny needs a red blood cell transfusion. She needs to take medication to drain the excess iron from her body. Otherwise, she could die.

"It's called a silent killer," she said.

Before she was diagnosed with a blood disease, Kinney was big into competitive gymnastics.

"I would always be sore and stuff, but I never thought of it, and sick a lot," Kinny said.

"She was constantly running high fevers. Sick missing school," said her mother Aimee Patton.

It took several doctors but she finally got a diagnoses: Diamond Blackfan Anemia.

"It's basically a bone marrow failure," said Kinny.

But Kinny is a fighter. Wanting to make a difference, she launched Kinny's Kause.

 "We've been doing blood drives, we've been doing bone marrow drives. Then my brother said, I think we need to do something bigger," she said.

Family and friends have been working hundreds of hours putting on their first charity golf event at Triology Golf Club, complete with an auction and prizes like DBacks tickets, hotel stays, big screen TVs, jewelry and even a trip to Alaska.

"Our hope through Kinny's Kause is to be able to give back," said Aimee.

Kinny's on the bone marrow registry list and says she'll keep on climbing until she's better.

For more info, go to: www.KinnysKause.org

Copyright 2013 CBS 5 (KPHO Broadcasting Corporation). All rights reserved.

  • Local newsMore>>

  • Reward for info on death of Tucson man goes up to $2,500

    Reward for info on death of Tucson man goes up to $2,500

    Sunday, April 23 2017 1:46 AM EDT2017-04-23 05:46:55 GMT
    The reward for information that leads to an arrest is now $2,500 (Source: Tucson News Now).The reward for information that leads to an arrest is now $2,500 (Source: Tucson News Now).

    The reward for information on the death of a Tucson man who was beaten to death outside of a convenience store in 2011 has gone up from $1,000 to $2,500.

    The reward for information on the death of a Tucson man who was beaten to death outside of a convenience store in 2011 has gone up from $1,000 to $2,500, according to the local advocacy and support group Homicide Survivors, Inc.

  • Police: man shot while trying to steal car

    Police: man shot while trying to steal car

    Saturday, April 22 2017 9:47 PM EDT2017-04-23 01:47:26 GMT

    Tucson police say a man was shot after trying to steal a car in the 2800 block of East Manchester Street.

    Tucson police say a man was shot after trying to steal a car in the 2800 block of East Manchester Street.

  • DPS responds to motorcycle crash in Cochise County

    Saturday, April 22 2017 8:10 PM EDT2017-04-23 00:10:05 GMT
    DPS is investigating a serious crash near SR 82 and SR 90DPS is investigating a serious crash near SR 82 and SR 90

    First responders rushed to the scene of a motorcycle crash Saturday afternoon in Whetstone. The crash happened near the junction of State Route 82 and State Route 90, according to Arizona Department of Public Safety. In response to an email asking for information, DPS confirmed that it was a serious crash involving a motorcycle and no other vehicles. Return to this story for updates as we learn them. MOBILE USERS: Download our app on your Apple and Android ...

    First responders rushed to the scene of a motorcycle crash Saturday afternoon in Whetstone. The crash happened near the junction of State Route 82 and State Route 90, according to Arizona Department of Public Safety. In response to an email asking for information, DPS confirmed that it was a serious crash involving a motorcycle and no other vehicles. Return to this story for updates as we learn them. MOBILE USERS: Download our app on your Apple and Android ...

  • Trending StoriesTrending StoriesMore>>

  • VIDEO: Girl rescued after falling out of bus

    VIDEO: Girl rescued after falling out of bus

    Sunday, April 23 2017 3:48 AM EDT2017-04-23 07:48:55 GMT
    Sunday, April 23 2017 3:48 AM EDT2017-04-23 07:48:55 GMT

    The 4-year-old has a broken jaw and will need surgery, but she is expected to be OK, her mother says.

    The 4-year-old has a broken jaw and will need surgery, but she is expected to be OK, her mother says.

  • Mississippi high schooler's prom outfit goes viral

    Mississippi high schooler's prom outfit goes viral

    Thursday, April 20 2017 3:09 PM EDT2017-04-20 19:09:04 GMT
    Source: FacebookSource: Facebook

    She set the internet on fire this weekend and today we caught up with Jackson native Faith Thigpen as she was being professionally photographed in her blinged out prom jumpsuit.

    She set the internet on fire this weekend and today we caught up with Jackson native Faith Thigpen as she was being professionally photographed in her blinged out prom jumpsuit.

  • Fight between TX cashiers caught on video

    Fight between TX cashiers caught on video

    Sunday, April 23 2017 7:28 AM EDT2017-04-23 11:28:42 GMT
    Sunday, April 23 2017 7:28 AM EDT2017-04-23 11:28:42 GMT

    The mother of one of the employees says her daughter was being bullied by the other woman, and management didn’t help.

    The mother of one of the employees says her daughter was being bullied by the other woman, and management didn’t help.

Powered by Frankly